Links to Other Cystic Fibrosis Sites:
1st
Annual PACFI Trans Am Raffle
Win a 1969 Pontiac Trans Am Convertible Recreation!
Only 8 original Trans Am Convertibles were produced in 1969.
Only 10,000 tickets will be sold for raffle to be held March 2009.
Site has more information, rules, car specifications and tons of pictures.
You can also order your tickets online.
Cystic
Fibrosis Association of North Dakota (CFAND)
This site devotes its time and financial resources to helping North
Dakotans with
Cystic Fibrosis (CF) and their families.
The
A-Z International Medical Directory
a comprehensive international
resource covering Cystic Fibrosis research, hospitals, charities,
funding and basic educational information for rapid access and retrieval,
plus a chat room.
Cystic Fibrosis Research, Inc. (CFRI)
Cystic
Fibrosis Worldwide
CF Worldwide provides supports and services
to people with CF in
60 member countries. PACFI is partnering with CF Worldwide in selling
Burke P. Bears all over the world to create an international awareness
of the need for improved CF health care.
United States Cystic Fibrosis Foundation
The
website of the Billy Cook Foundation
The
Billy Cook Foundation was established in memory of William I. Cook,
Jr., to help people living with CF with day-to-day expenses by providing
financial assistance; and to increase awareness for the need for organ
donations.
The
Transplant Sharing Exchange
a
message board intended for the use of transplant recipients and people
awaiting
or considering a future transplant. The board is dedicated to all organ
donors.
Norma
Kennedy Plourde's CF site
with
links to just about every CF-related site in the world!
The
HealingWell.com Cystic Fibrosis Resource Center
features medical news, health articles, doctor-produced video webcasts,
message boards and chat rooms, email, newsletters, books and reviews,
and resource directories on Cystic Fibrosis.
John's site in honor of his beautiful daughter, Leigha
Melinda Sue's site, "My Sunshine," in memory of her son, Chuck
This is the national web page of The Compassionate Friends
Sparkey
The Spider
Travis
Flores has Cystic Fibrosis and he's written a book about Sparkey, the
spider who never gives up. You're invited to order a signed copy of
Travis' book, and proceeds benefit several organizations.
The
Cochrane Cystic Fibrosis & Genetic Disorders Review Group
comprises
an international network of health care professionals, researchers and
consumers preparing, maintaining, and disseminating systematic reviews
of randomised control trials in the treatment of cystic fibrosis and
other genetic disorders.
Activities of the Group are co-ordinated by its Editorial Base, located
within the Department of Child Health, University of Liverpool, United
Kingdom.
This
web site has a variety of CF items for sale
Including
purple ribbon "Cure Cystic Fibrosis" car magnets, pens, tote bags,
key chains, T-shirts, and more.
This
site is a comprehensive directory and guide
to everything in Pennsylvania.
Pennsylvania Cystic Fibrosis Inc • P.O. Box 29 • Mifflinburg, PA 17844 • 1-800-900-2790 • E-mail: bobderr@ptd.net
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